About DD-NJ

Our group is comprised of parents of children who are dyslexic. We are not experts, nor are we a formal business or a traditional educational organization. We are truly grassroots! We offer other stakeholders the benefit of our collective experiences. We encourage parents and children to meet with their local, state, and national policy-makers to share their stories, report on unmet needs, and make suggestions for improved policy and/or legislative initiatives for identifying and supporting dyslexic children in our public schools.


October 2020 will mark our 9th Anniversary!

Our beginnings… In October 2011, 8 parents took a train ride to New York City to attend a National Center for Learning Disabilities (NCLD) luncheon. On that trip, we shared our stories, our struggles, our heart breaks, and our frustrations and anger about trying to help our dyslexic children and getting nowhere within our public schools. No one was from the same NJ town, but we all had similar stories, similar journeys. We were virtually strangers to each other. By the end of the day, we declared that someone should do something to fix the system and to help other parents like us. We decided that collectively, maybe we could be that “someone”.

The news article that started it all: Trenton Times 2/27/2012
Princeton Group Says It’s Hard to Get Children’s Dyslexia Treated or Even Recognized

Decoding Dyslexia on the National and International Stage!

Since our inception, parents from across the nation and beyond have been inspired, empowered, and engaged. Today, we are happy to boast that the Decoding Dyslexia movement has expanded to all 50 U.S. states and internationally too!

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TOMORROW 12/1 -- LIVE Broadcast on December 1st at 3:00 pm for the historic launch of the bipartisan NJ Legislative Disabilities Caucus. Caucus Chair Senate President Stephen Sweeney, other legislators, and advocates from the disability community will speak in a livestreamed press conference. The purpose of the Legislative Disability Caucus is to serve as a bipartisan forum within the New Jersey Legislature for lawmakers and their staff to consider the impact on the disability community when shaping ALL public policies in the Garden State.

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Does your district's reading program include the necessary components of what makes for "good instruction" for ALL learners? The K-3 Core Instruction Analysis Tool, part of the new PD resources (see posts below), provides a framework to analyze the research-based
components of core instruction. Does your district's program contain all the necessary pieces?
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Educators and Parents! Make sure your district knows about the New Jersey Department of Education Office of Special Education's new webinar series on The NJ Dyslexia Handbook: A Guide to Early Literacy Development. The webinars will guide educators and families through the process of identifying dyslexia and reading disabilities, and highlights best practices for screening, assessing, and instructing students with reading challenges. Click for the memo:
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